
We all have experienced moments in our life that are pivotal and play a huge role in how you will continue or change your path. After exhausting all options at the end of a 2 and a half year battle, I received a gift. One that I hold most precious and priceless above all. To tell you the truth, I was expecting my gift to be some kind of medical breakthrough, a magical pill that would be able to heal my body and my brain.
For years I have struggled with depression and anxiety, that later I would find out were a direct result from a physical illness. My nervous system was malfunctioning and I could not control what was happening to my body.
I would be in the most beautiful bed of flowers, with a sunset glowing behind purple mountains. I would be snuggling my babies and my husband would be standing next to me with his arm around my shoulders.... and I could not feel. It was extremely uncomfortable and waves of panic and anxiety would fill my body. The feelings hit me harder than a freight train.
I could not get a reprieve and my entire digestive system was a wreck. I had constant blackouts and the urge to faint every time I drove a vehicle, entered a store, or church. The pounds started to melt off my body as I had no appetite. I was constantly shaking and found my brain in a constant fog, I could not think for the world and felt terrified all the time.
I felt scared and alone and woke up each morning only to find that my nightmare would start all over again. There were some mornings that I would wait until the clock said 3:45am and quietly leave my house to climb in bed with my mom hoping that she could comfort me in ways Justin couldn't. No luck. There was no relief for me anywhere. I felt so alone.
I could not figure out why everyone else who I had talked to that battled with anxiety and depression were eventually getting better and I was not. I would proceed to ask them if they had ringing in their ears, sensitivity to light, short of breath while reading to your kids or singing the hymns at church. Blackouts when getting out of the shower or entering the store or church. I had a list of other strange symptoms and quiet frankly felt like I wasn't going to make it another year. I was in my own personal Gethsemane and time was running out. I would ask Doctors and others my strange symptoms and no one had any answers for me. I prayed and prayed along with my Justin and my mom that I would be able to find someone who would have some answers to my symptoms.
In the meantime, I miscarried a baby, which added a downward tailspin. My hormones were all over the charts and I was unable to produce progesterone. It was emotionally draining and was adding complications to our already impossible conception issues. This was hard and I felt the rock bottom impact of the chain of events. My world was out of control and I was hurting in every way.
My family was beyond worried and I had not one bit of hope left in my sick body. They held fasts and constantly prayed for me. I had priesthood blessings that offered comfort and gave me the strength to endure one more day. Doctor after doctor, and specialists never had any concrete answers. I had tried several medications and went through 3 different counselors- which by the way, gave me amazing tools that I will use the rest of my life- sick or not. Acupuncture and chiropractic sessions mixed with hours of research online trying to find out what was wrong with me. Exercise and various diets were tried. I read several books on anxiety and depression and tried a well known natural doctor. I felt I could not last and had several days where I was hanging on by my fingernails. I had an awesome support system, Justin, my parents, brothers, sister in laws, Aunts, cousins, and friends all were helping me in ways they will never know.
Then, unexpectedly I was given a miracle in the form of a girl I had never met. Through a series of events that happened in one day, I ended up on the phone with my cousin. My blood pressure was rock bottom, I was extremely symptomatic and I was on the brink of fainting on the floor of the grocery store. My cousin had a friend, her best friend, that dealt with fainting spells on a daily basis as well. She put me in touch with her and that is when the magic happened.
After telling her about my "strange" symptoms and my 2 and a half year battle, she quietly paused and said, "I think you have my illness." She gave me a website and told me to look it over and to call her back. While I was going through the checklist, I noticed every single one of my symptoms were on the list. I had many emotions running through my body. I did not want an illness, but I knew I had this. I called her back and we both cried.
I went to the Doctor the next day and it was confirmed that I had
dysautonomia, a form of
POTS (
Postural Orthostatic Tachycardia Syndrome).
Since that day, I have spent hours and hours on the phone with her. She has since put me in contact with her doctor, and I am fianlly getting the treatment that enables me to manage this illness. She quickly became a close friend and certainly the only person I have ever known that could truly, fully understand what I am going through. She has battled this illness and has filled me up with hope. I have had many conversations full of laughter and tears. I know all about her family and her struggles. We have shared many things we feel so deeply about and our connection is indescribable. I am so grateful that my cousin shared her with me. She has given me an angel.
We share the same illness and the same
beliefs. And in a way, she saved my life. To me, she is even more than a best friend. A little person Heavenly Father wrapped up and divinely placed in my path. She gave me the last piece to my impossible 5000 piece jigsaw puzzle.
She lives 12 hours away and with our busy schedules and families I thought it wouldn't be until next summer that I would get to meet her, but the stars aligned and it got to be sooner. She was on her way to Education week, in Utah with her parents and on a whim they decided to go through my city. It was late and an
opportunity that I would never let fall through the cracks, presented itself. We were able to meet up north, she with her parents and me with my mom. I felt as if it were Christmas and could barely contain my excitement and nerves. We ran toward each other and embraced. My voice on the other end of the phone that had gotten me through so much now had a face. My kindred spirit.
Although I am still struggling with this illness, it has gotten SO much better. I have my life back and am learning how to manage life with POTS. I am healing slowly and am not alone anymore. I am finally at the point where I can say that I am grateful for this experience. I have learned so much about the enabling power of the atonement. I have hope again and that feels so good to say. I treasure all that I have gained and learned from this and hope I may be able to help someone the way my new friend has helped me.